Category Archives: Uncategorized

What does e-patient mean?

epatient

When I use the term epatients, people ask me what that means? I stumble to explain.

Here is an example from a glossy magazine, Good Housekeeping.

 I started getting connected with other EB parents through my blog. It was a tool God used to save Jonah. I’d describe issues we were facing, like acid reflux or not eating or bandages that stuck, and moms would suggest what worked for their kids. To our doctors’ credit, they didn’t look at me like I was a crazy person when I brought in suggestions but gave them a shot. We all partnered to try to get him as stable as possible.

Read the whole article “My Son Blisters When I Hug Him” here. 

Until I get my elevator speech smoothed out,participatory here is another explanatory link.

 

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Weekend Reader: ‘Our New Head of State’

I like this composite article about Trump because it cites and links the original sources.

Why does it fit on “Princeton” comment? I met the author, Maxwell Anderson,maxwell at Princeton University’s EQuad, at the Friend Center a couple of years ago. When I find the picture and can remember exactly what event, I’ll post it, but he’s worth reading.

Each week, for this ‘deep thinker’s guide to modern culture,’ he draws from multiple sources to summarize a different topic. What is his business model? That’s another story.  

Sassy Latina? Maybe not always.

 

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“I am inspired by lessons from the Caribbean that underscore creativity, resilience and the capacity for both resistance and celebration in the midst of difficulty,” says Alicia Diaz, a professional dancer who grew up in Princeton. She will participate in an unusual lecture demonstration this Friday afternoon  at Princeton University. Entitled “Diasporic Body Grammar: an encounter of movements and words,” it will be December 2, 2 to 5:30 p.m. in the Wilson College Black Box Theater.

Asked, in an interview, whether she struggles with stereotypes, Diaz brought forward the stereotype of the “sassy Latina.” “Here ethnicity, gender, and sexuality come together to be consumed and dismissed at the same time. I struggle with rejecting the stereotype and its negative implications while also acknowledging and owning its potential power.” 

Diaz, assistant professor of dance at the University of Richmond, will perform with her partner, Matthew Thornton. Here is a video of her work. Also participating will be a Brazilian artist, Antonio Nobrega. For information, contact Pedro Meira Monteiro pmeira@PRINCETON.EDU

 

 

Waking up in America on November 9.

The worst of it, said 17-year-old Ziad Ahmed, ” is waking up in America after crying yourself to sleep, and not feeling safe. (If you don’t feel that way, you don’t get to belittle how millions of us are feeling.)

Here is his essay in the Huffington Post , linked to the web page at NIOTPrinceton, where he is a board member.

Tomorrow is another day, says Ahmed. “But tomorrow, I will continue to rise as a proud American-Muslim teenager, and I will not let anyone take that away from me no matter what tomorrow holds. Tomorrow, we rebuild. We have to.”

 

Before Bridgegate: Bennett Barlyn

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“We were there first,” says Bennett Baryln. “Bridgegate has been fascinating because it lifts the veil of what we saw in Hunterdon, the taking over of agencies to serve only political ends.”

Barlyn finally got his just due — a $1.5 million payment from New Jersey settling the case against, as the U.S. 1 article states, a  “Bridgegate-like web — that includes small town shenanigans connecting to statehouse leaders, respected legal professionals getting fired, and a lone lawyer’s quest to find the truth.”

Dan Aubrey wrote the investigative article in this week’s U.S. 1  here. Aubrey’s first person similar investigation from 2014 is here. If you are a fan of Governor Chris Christie, either article will make you very uncomfortable. How could this happen? Bridgegate may have the answer.

“When,” a poem by Daniel A. Harris

May time keep running back to me — and may I use it wisely.

NIOT Princeton

Daniel Harris, poet, scholar, environmentalist, and long-time Not in Our Town supporter, had the following poem accepted for publication in the Connecticut River Review.  Daniel has given us permission to publish it on the blog.  Daniel invites you to visit his website, danielharrispoet.net.

When

Since time is running out for me

to say about

the currents of oceans

gulls on their errands

the wind-lashed palms

And time is running out for me

to say about

the horses, their riders

beasts of burden, oxen

yoked to plow the many fields

And time is running out for me

to say about

the     other chattel

people caught and shackled

shipped and bought

enslaved for free labor, profit

While time runs short for me

to say about

women abused to breed

the owners who used them

children, men schooled by whip

Time’s run out for me

to cough up phlegm and tell

View original post 42 more words

Dirty Dancing’s Princeton Connection

 

The author of Dirty Dancing, Eleanor Bergstein, lived in Princeton in 1986 when she wrote the movie (she was married to English professor and poet Michael Goldman). U.S. 1 Newspaper did a cover story on her. I remember her telling me what a tight time budget she had (less 2 months), how she wished she could have reshot some scenes, and that she based it on her adolescence doing what they called ‘dirty dancing’ (actually the mambo) at basement parties.

This article tells how they kept the cameras running during rehearsal breaks in case there  was usable film, how she prepared to write the movie by emceeing dance parties in her Princeton home, how she was pressured to take out the abortion scene, which was central to the plot.

Another Princeton connection was one of the dancers, Jennifer Stahl

What brought it up now?  An Urban Joker post on  35 things you probably didn’t know about the movie. And I fell in love with this movie all over again.

 

 

‘Dust does not discriminate’

A shout out to Telequest who produced this great video for Isles on how to fight dust with effective house cleaning methods. Watch it if you need motivation to use a vacuum cleaner more often. I just found the video and like the tip about getting an extra damp mop bucket instead of using the kitchen sink.

Leaning in for Slaughter and Morris

morris
“The” by Mark Morris, on the McCarter program on April 12

I just registered for the WIBA program featuring Anne Marie Slaughter for (as I write on Monday) for Tuesday, April 12, 5 p.m.. Finally broke down and did it, wasn’t going to (my favorite choreographer Mark Morris is at McCarter that night) but I will just have to leave Greenacres Country Club early. Wasn’t going to go because I have mixed feelings about Slaughter’s opinions on why women can’t have it all as blurted out in the notorious article in The Atlantic. 

Of course women can’t have it all. We pre-Gloria Steinem brides knew that all along.

But I got so confused by the discourse (she said/ She said/ she said/ She said) that I gave up and went on doing what I was doing before, which was trying to have it all and not succeeding.

photo anne-marie-slaughter

So I’m hoping this former Princeton professor turned media guru will enlighten me on her current views about women. (Will she also weigh in, as a former Woodrow Wilson School dean, on the Wilson/name controversy?) . I will have to  leave early to see Mark Morris Dance, but at least I’ll take home a copy of Unfinished Business,  her new book based on the article that caused so much commotion.

As for Morris — Virtually all of Morris’s choreography is to live music, including Whelm to Debussy and The,  a four-hand arrangement of Bach’s first Brandenburg concerto. (There will be one piece to recorded music; the songs of Ivor Cutler. Complete program here.)   I firmly believe the commotion surrounding the excellence about Mark Morris is well deserved.