Category Archives: Healthcare

Epi First, Epi Fast, No Exceptions.

food allergy
Illustration from FARE conference

Here is daunting but necessary information about food allergies – and this is for everybody, not just those with the allergies, or their parents or siblings, but also for anybody who has contact with food, and anyone in the classroom, and anyone in contact with the public. Everybody.

This account of the three-day convention for FARE, a national organization devoted to food allergy research and education, comes from Susannah Fox. (Yes, my daughter).

If you don’t know anyone with anaphylactic allergies (for whom mistakes can be fatal) at least dip into this post. You will understand why you get pretzels, not peanuts, on the plane. You will be more careful at the buffet, so you don’t accidentally drip tuna salad on another ingredient.  You will learn something about kissing that you didn’t know.

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Sustaining an unsustainable life: where was Paul’s POLST form?

 

Many Princeton people will remember Paul Scharf. He pushed carts at McCaffrey’s, he came to the HUB, a Saturday night social activity at Princeton United Methodist Church, he attended services there.

In Richard K. Rein’s U.S. 1 Newspaper column this week is an account of an end-of-life experience that should NOT be happening. Paul could have been encouraged to sign an Advanced Care Directive (available at Princeton Senior Resource Center) or, better, to sign a POLST form.  It could have prevented his medical team at a nursing home from having to sustain his unsustainable life. A POLST form (Practitioner Orders for Life Sustaining Treatment) is not required by law, but in New Jersey it is strongly recommended. 

Paul can no longer talk to tell what he wants.

 

 

New at the hospital 3/8

hospital house organ for blogpost On Thursday March 8 the Princeton Regional Chamber hosts Lori Gustave for its membership lunch at the Forrestal Marriott  Gustave is VP of business development at Penn Medicine, which has taken over (officially, merged with) University Medical Center. If you think you might be sick in the next couple of years, you might want to hear how about how Penn Medicine uses an
“advanced care strategy” and organizes it around the patient’s disease or condition.

As for me, for the next few months, I will not focus hospitals, medical care, nursing facilities. Somebody can tell me what she said.

brea film
Journalist Jennifer Brea couldn’t get any doctor to explain why all her systems seemed to be collapsing. She used the Internet to diagnose her own disease, Myalgic Encephalomyelitis, better known as chronic fatigue syndrome. Her documentary, “Unrest,” starts out with shots of the University Medical Center at Princeton in Plainsboro. shows on WHYY and WNET at 10 a.m. tonight, January 8. It premiered at the Garden Theater with her husband, Princeton Politics professor Omar Wasow and Imani Perry doing the commentary.
Here is the Princeton Alumni Weekly story. 
And here is commentary from Susannah Fox,   focusing on how people with rare diseases can find help on the Internet.

What if the government just gave everyone money?

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The Guaranteed Minimum Income plan, or Universal Basic Income, is not new. It was researched by a Princeton company, Mathematica Policy Research (MPR), back in 1969. It’s the subject of Diccon Hyatt’s excellent cover story “Driven by Data” in this week’s U.S. 1 Newspaper.

Led by Paul Decker, MPR is a company I’m proud to have in Princeton.

Cross your fingers: health news

Today’s healthcare news:

I’ll start with Juliet Eilperin’s coverage of the healthcare bill in the Washington Post, “From hospitals, doctors, and patients, a last gasp of opposition to the Senate health-care bill,” A Daily Princetonian alumna, the Post’s senior national affairs correspondent, she tells of how hospitals have mounted unusual lobbying efforts. ‘While McConnell had been pressing for a vote on the measure before the end of June, the delay gave opponents more time to marshal their arguments and make their case to lawmakers. This final lobbying push represents opponents’ best chance of derailing McConnell’s final drive to passage, which continues to look uncertain.’

Today the CEO of Incyte, Herve Hoppenot, speaks at the Princeton Regional chamber lunch. Look for me in a striped jacket. At age six I ‘worked’ in my parents’ cancer research lab and 70 years later I have a vested interest in new cancer cures.

 

Funding the Innovation Makers

Techies play in a high stakes intramural tournament every February at one of the state’s best – free — networking opportunities. On February 15. at Princeton Innovation Forum  (PrincetonIF) the Andlinger Center for Energy and the Environment, they gave away $30,000 in one afternoon. All the teams were from Princeton University with Princeton profs as advisors or main participants. Sponsored by the Keller Center,  PrincetonIF focuses on commercializing technology developed at Princeton University.

Diccon Hyatt made it the cover story in this week’s issue of U.S. 1.  It reads best in hard copy, so grab one today from a newsbox before it gets replaced tomorrow. Or read it here.

With angels, venture capitalists, lawyers, and supporters watching, each team made a three-minute pitch. Then that power crowd emptied out into the crowded lobby, mobbed the wine bar, and the noise level rose as those-in-the-know and those-with-money interviewed the presenters and each other.

My favorite moment was introducing Chris Owens of Oppenheimer Nexus to Lou Wagman and Joe Montemarano (photo top right). More on that in another post.  Also (apparently I can’t control random order) are photos of second prize winner  Niraj Jha, professor of electrical engineering, who is working on Internet security; first prize winner Robert Pagels presenting his technology for manufacturing microparticles for delivering biologic drugs; Pagels and his team get their pictures taken, and U.S. 1’s Diccon Hyatt interviews Joe Montemarano.

Read the story here to learn about exciting technology and get on the Keller Center’s mailing list here. Always something exciting going on at the Equad.

 

Not a New York State of Mind

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Image from Columbia Journalism Review post “Beyond the Parachute: Newsrooms rethink centralized model” Feb 26, 2017, Jean Friedman-Rudovsky

Geographic diversity is connected to something crucial re what journalists need: audience trust in their work. The Columbia Journalism Review takes a hard look at how coastal newsrooms ignore middle america in this article.

When reporters “parachute in” to cover a story, they are likely to miss the nuances.

“Often people outside of these major city bubbles see themselves depicted in print and on television in a sensationalized way, without any nuance,” says a journalist who lives in South Carolina.“The thought is ‘well, if they’re getting depictions of us wrong, what else are they getting wrong?’

We in Princeton recognize that everybody thinks New York is better.Where do we go when we are really sick? What newspaper do we need when we really want the truth? Here is the Saul Steinberg cartoon about that self-effacing city, followed by two journal items inveighing against New York-centric viewpoints.

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Saul Steinberg “Ninth Avenue” cover for the New Yorker, March 29, 1976

 Journal item #1 : I lived outside the New York sphere when I worked as a freelance dance writer in Philadelphia and then Pittsburgh. For dance critics, even those big cities are considered boondocks.  A New York critic’s move to Philadelphia drew condolence letters.

To survive, vampires need blood; dance critics need to see and review dance, and New York is the best place to do it.

Back then, to qualify as a voting member of the Dance Critics Association, you had to have had a review published in a print newspaper during the previous year. Features (advance stories based on a critic’s experience with previous performances) didn’t count.

Fine for New Yorkers and big city papers, but in the boondocks, few newspapers would print reviews. I brought this up so often that I got to be known, somewhat affectionately, as the “lady from Philadelphia” even when I lived in Pittsburgh.

Journal item #2: Reporters treasure good sources. Reporters from small papers — from areas unknown to the “big city guys” — particularly treasure sources that respond with the same attention and respect that they might give to a Washington Post or New York Times reporter.

How I ran across this CJR story was because I follow the path of a former assistant managing editor of the Wall Street Journal, Richard Tofel, who always made himself available when I was a reporter at U.S. 1 Newspaper. (We weren’t a boondocks paper — we delivered to the Dow Jones building on Route 1 North, but it was still gratifying to always get a return call.)

Tofel is now president of the Pulitzer Prize-wining nonprofit newsroom, ProPublica. It’s expanding to Chicago. Not exactly the boondocks, but at least it’s not New York. ProPublica offers a new model for investigative journalism. Whether that comes from New York or the boondocks, we need that now.

To Pro Publica, you can contribute information. You can also contribute money.  And if you care about the future of journalism, subscribe to the Columbia Journalism Review. 

 

 

 

 

 

Share your medical news – and learn

A friend wrote to me, jubilant, because her husband – diagnosed with a prostate problem — had researched and found a state of the art therapy “green light laser prostate therapy.” it worked wonderfully, she says. Apparently it is not available here in Princeton.

I urged her to try to share this news with others through a social media strategy, participatory medicine. Read about it here on medium. If you can’t get into the medium site, try this one. 

For the experts — what participatory medicine platform would be best for prostate therapy recommendations?

Princeton’s Got Innovation

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Thirty thousand grand will be on the line on Wednesday, February 15, at the Innovation Forum organized by Princeton University’s Keller Center. Participants present their research in a three-minute “elevator pitch” to the audience and a panel of judges. Simon Cowell’s got nothing on this show!

Register to come and watch the excitement.  You get to see inside the Andlinger Center and there’s networking and refreshments afterward.